CHD Awareness:
February is heart month so we have decided to join in the efforts of raising CHD awareness while also raising some funds for research. Did you know 1 in 100 babies are born in the United States each year with a Congenital Heart Defect? This is equivalent to nearly 40,000 babies each year born with a CHD. During our journey we met many of these heart families. Some left without their babies just like us while many are still living their CHD journey. If you’ve ever met a heart warrior you know how resilient these kids are. Most of these kids have to fight for their life from the moment of birth and continue to fight throughout their life.
We are having a shirt fundraiser to help spread awareness for Congenital Heart Defects. A portion of each shirt sale will be donated to HLHS Consortium and Heart Works Inc. to help with their research efforts to improve the lives of those with CHD. We also hope when wearing these shirts it’ll spark more conversation around CHD’s. HLHS Consortium is working with Heart Works Inc. to build heart muscle that will be tested in many different shapes and sizes of CHD with a single purpose to repair the defect-thus providing a curative approach for CHD. According to hlhsconsortium.org “Hearts born with a “manufacturing defect” need to be biologically rebuilt, not just surgically repaired as we have been doing for decades. Current technology with stem cells and regenerative medicine provides a pathway forward to bioengineer new heart muscle that is genetically identical to the individual with a congenital heart defect-thus eliminating the need for immunosuppression drugs.”
Please consider ordering a shirt and help us help these kids and families.
Link to shirts: https://chdawareness2024.itemorder.com
To learn more about the HLHS Consortium and Heart Works please check out the links below.
https://www.hlhsconsortium.org/
Heart Month Dates to remember:
February 2nd: Wear Red Day
February 7th -14th: Congenital Heart Defect Awareness Week
February 14th: National Congenital Heart Defect Day